Heart transplant needed for baby girl: 'It's hard to watch her b - KTTC Rochester, Austin, Mason City News, Weather and Sports

Heart transplant needed for baby girl: 'It's hard to watch her be like this'

Posted:
Baby Charlotte at Saint Marys Baby Charlotte at Saint Marys
Charlotte's mom, Nikki, and dad, Dave Charlotte's mom, Nikki, and dad, Dave
Charlotte's brother, Alex, gives her a kiss. Charlotte's brother, Alex, gives her a kiss.
Charlotte's sister, Grace, speaks about the family's medical journey at Folwell Elementary. Charlotte's sister, Grace, speaks about the family's medical journey at Folwell Elementary.
ROCHESTER, Minn. (KTTC) -

A 4-month-old girl being treated at Mayo Clinic is in urgent need of a heart transplant.

Charlotte McChesney was born in February and was diagnosed with Noonan syndrome, a genetic disorder characterized by abnormal development in various parts of the body. For Charlotte, her heart muscles are abnormally thick -- a condition called hypertrophic cardiomyopathy -- that prevents her heart from pumping blood properly. 

"The best way to imagine is she's running a marathon all the time, like how we would feel if we just ran a 5K," explained her father, Dave.

In addition, Charlotte's disorder features an RAF1 gene mutation, making her one of only 11 documented cases in the world, said her mom, Nikki.

"Our reaction at first was no matter what she had, we were gonna love her," Nikki said.

So far, Charlotte has spent her entire life in hospitals. She previously stayed in the neonatal intensive care unit at Children's Hospital in Minneapolis. In April, she was transferred to Mayo Clinic Hospital, Saint Marys Campus.

"I'm sad. It's hard to watch her be like this," said Nikki as she watched her daughter in the ICU. "Just sedated and uncomfortable. I wish she could just be a baby... Yeah, breaks our hearts."

Charlotte's family is from Benson, Minn. But her parents left their jobs and their community in order to be with her in Rochester. Charlotte's mom and dad, her 10-year-old sister, Grace, and her 7-year-old brother, Alex, are currently staying at the Ronald McDonald House. 

The family just learned that Charlotte's heart has gotten so big, it has completely collapsed her left lung. To help her breathe, Charlotte is scheduled to undergo a tracheotomy on Thursday.

"Maybe she'll smile again, take a bath, hear her cry -- those little things that we overlook," said Nikki.

But Charlotte's long-term survival depends on a heart transplant.

"It's something that we would not take lightly. It would be the most amazing gift and the biggest miracle that we could ever receive," Nikki said. "We would owe her whole life to some amazing other baby."

Charlotte has been listed as 1A (the highest status) on the transplant list for nearly 70 days. But so far, a donor has not been found.

Charlotte's sister, Grace, spoke about her family's medical journey during the fifth-grade recognition assembly at Folwell Elementary School Wednesday afternoon. She wrapped up her speech by sharing an important life lesson.

"Put your hand on your chest. Do you feel that? It's your heart. God gave you it for a reason and not everyone gets that privilege. And sometimes, people take that for granted. I know I did. But I realize I'm happy I'm healthy, and I can run and laugh. So always remember, we are all truly lucky," Grace said at the assembly.

To help the McChesney family with their mounting medical bills, you can donate to their YouCaring page by CLICKING HERE. In addition, you can follow Charlotte's progress by visiting her Facebook page.

The family says donations can also be dropped off at the Ronald McDonald House at 850 2nd St. SW in Rochester.

  • Mobile Top StoriesMore>>

  • Couple charged in death of 3-year-old foster child

    Couple charged in death of 3-year-old foster child

     A Brooklyn Park couple is charged with murder in connection with death of a gravely malnourished foster child. The Star Tribune reports 33-year-old Sherrie Dirk and 31-year-old Bryce Dirk were indicted late Thursday on charges of first- and second-degree murder. 

    More >>

     A Brooklyn Park couple is charged with murder in connection with death of a gravely malnourished foster child. The Star Tribune reports 33-year-old Sherrie Dirk and 31-year-old Bryce Dirk were indicted late Thursday on charges of first- and second-degree murder. 

    More >>
  • Volunteers provide food, care also in wake of Iowa tornadoes

    Volunteers provide food, care also in wake of Iowa tornadoes

    Businesses, groups and volunteers are pitching in to provide more than cleanup in the wake of tornadoes that destroyed buildings, trees and vehicles in central Iowa earlier this week. 

    More >>

    Businesses, groups and volunteers are pitching in to provide more than cleanup in the wake of tornadoes that destroyed buildings, trees and vehicles in central Iowa earlier this week. 

    More >>
  • HIGHLIGHTS: Spring Creek MX Pro Nationals

    HIGHLIGHTS: Spring Creek MX Pro Nationals

    Spring Creek MX Pro Nationals Results: 250 Class Overall Results (Moto Finish) Aaron Plessinger, Hamilton, Ohio, Yamaha (1-1) Justin Cooper, Cold Spring Harbor, N.Y., Yamaha (4-3) Alex Martin, Millville, Minn., KTM (7-2) Jordon Smith, Belmont, N.C., KTM (3-7) Joey Savatgy, Tallahassee, Fla., Kawasaki (10-4) Chase Sexton, La Moille, Ill., Honda (8-5) RJ Hampshire, Hudson, Fla., Honda (6-11) Austin Forkner, Richards, Mo., Kawasaki (2-18) Colt Nichols, Muskogee, Okla., Yamaha...More >>
    Spring Creek MX Pro Nationals Results: 250 Class Overall Results (Moto Finish) Aaron Plessinger, Hamilton, Ohio, Yamaha (1-1) Justin Cooper, Cold Spring Harbor, N.Y., Yamaha (4-3) Alex Martin, Millville, Minn., KTM (7-2) Jordon Smith, Belmont, N.C., KTM (3-7) Joey Savatgy, Tallahassee, Fla., Kawasaki (10-4) Chase Sexton, La Moille, Ill., Honda (8-5) RJ Hampshire, Hudson, Fla., Honda (6-11) Austin Forkner, Richards, Mo., Kawasaki (2-18) Colt Nichols, Muskogee, Okla., Yamaha...More >>
  • Most Popular StoriesMost Popular StoriesMore>>

  • Couple charged in death of 3-year-old foster child

    Couple charged in death of 3-year-old foster child

     A Brooklyn Park couple is charged with murder in connection with death of a gravely malnourished foster child. The Star Tribune reports 33-year-old Sherrie Dirk and 31-year-old Bryce Dirk were indicted late Thursday on charges of first- and second-degree murder. 

    More >>

     A Brooklyn Park couple is charged with murder in connection with death of a gravely malnourished foster child. The Star Tribune reports 33-year-old Sherrie Dirk and 31-year-old Bryce Dirk were indicted late Thursday on charges of first- and second-degree murder. 

    More >>
  • Two hospitalized for Legionnaires' disease from care facility in Albert Lea

    Two hospitalized for Legionnaires' disease from care facility in Albert Lea

    St. John's Fountain Lake (Photo from St. John's - Fountain Lake Community)St. John's Fountain Lake (Photo from St. John's - Fountain Lake Community)
    St. John's Fountain LakeSt. John's Fountain Lake

    Health investigators are hunting for a source of two cases of Legionnaires' disease at a care facility in Albert Lea. Two residents at St. John's Fountain Lake complex have been hospitalized after showing symptoms of Legionnaires' disease.  The first began in early June and the second resident started showing signs of the disease this past Thursday, according to the Minnesota Dept. of Health.

    More >>

    Health investigators are hunting for a source of two cases of Legionnaires' disease at a care facility in Albert Lea. Two residents at St. John's Fountain Lake complex have been hospitalized after showing symptoms of Legionnaires' disease.  The first began in early June and the second resident started showing signs of the disease this past Thursday, according to the Minnesota Dept. of Health.

    More >>
  • Man beaten and robbed in NW Rochester

    Man beaten and robbed in NW Rochester

    A man was robbed, assaulted and had his life threatened at a Rochester apartment complex. 

    More >>

    A man was robbed, assaulted and had his life threatened at a Rochester apartment complex. 

    More >>
  • Survivor recounts boat accident that killed 9 family members

    Survivor recounts boat accident that killed 9 family members

    Saturday, July 21 2018 12:18 AM EDT2018-07-21 04:18:42 GMT
    Sunday, July 22 2018 4:09 AM EDT2018-07-22 08:09:42 GMT
    (AP Photo/Charlie Riedel). People pray outside Ride the Ducks, an amphibious tour operator involved in a boating accident on Table Rock Lake, Friday, July 20, 2018 in Branson, Mo.(AP Photo/Charlie Riedel). People pray outside Ride the Ducks, an amphibious tour operator involved in a boating accident on Table Rock Lake, Friday, July 20, 2018 in Branson, Mo.
    More than half of the 17 people killed when a tourist boat sank on a Branson lake were members of the same Indiana family, and they likely wouldn't have been on the ill-fated trip but for a ticket mix-up.More >>
    More than half of the 17 people killed when a tourist boat sank on a Branson lake were members of the same Indiana family, and they likely wouldn't have been on the ill-fated trip but for a ticket mix-up.More >>
  • Authorities: Close to $100K found after deadly bus crash

    Authorities: Close to $100K found after deadly bus crash

    Friday, July 20 2018 3:15 PM EDT2018-07-20 19:15:25 GMT
    Friday, July 20 2018 5:54 PM EDT2018-07-20 21:54:17 GMT
    (Greg Sorber/The Albuquerque Journal via AP). Emergency personnel work at the scene of a deadly multi-vehicle crash involving a bus that occurred on Interstate 25 north of Bernalillo, N.M., on Sunday, July 15, 2018.(Greg Sorber/The Albuquerque Journal via AP). Emergency personnel work at the scene of a deadly multi-vehicle crash involving a bus that occurred on Interstate 25 north of Bernalillo, N.M., on Sunday, July 15, 2018.
    Authorities investigating a deadly commercial passenger bus crash along a New Mexico highway say one of the passengers was carrying a backpack filled with almost $100,000 in cash.More >>
    Authorities investigating a deadly commercial passenger bus crash along a New Mexico highway say one of the passengers was carrying a backpack filled with almost $100,000 in cash.More >>
  • Bush's former doctor fatally shot while biking near hospital

    Bush's former doctor fatally shot while biking near hospital

    Friday, July 20 2018 7:32 PM EDT2018-07-20 23:32:38 GMT
    Friday, July 20 2018 7:38 PM EDT2018-07-20 23:38:17 GMT
    Houston police say a doctor who once treated former President George H.W. Bush was fatally shot by an unidentified man when both men were riding bicycles through the city's Texas Medical Center.More >>
    Houston police say a doctor who once treated former President George H.W. Bush was fatally shot by an unidentified man when both men were riding bicycles through the city's Texas Medical Center.More >>
  • Jonathan Gold, Pulitzer-winning restaurant critic, dies

    Jonathan Gold, Pulitzer-winning restaurant critic, dies

    Saturday, July 21 2018 11:53 PM EDT2018-07-22 03:53:48 GMT
    Sunday, July 22 2018 3:20 AM EDT2018-07-22 07:20:24 GMT
    Jonathan Gold, who became the first restaurant critic to win the Pulitzer Prize for criticism, has died.More >>
    Jonathan Gold, who became the first restaurant critic to win the Pulitzer Prize for criticism, has died.More >>
  • Runners in Byron drink and run for charity

    Runners in Byron drink and run for charity

     Byron's Beer Mile Championship brought a lot of people out Saturday to run for charity.   

    More >>

     Byron's Beer Mile Championship brought a lot of people out Saturday to run for charity.   

    More >>
Powered by Frankly